“UPCOMING” BIG DATA FOR HEALTH POLICY SYMPOSIUM
The MIDAS Consortium is hosting BIG DATA FOR HEALTH POLICY SYMPOSIUM MIDAS project to Magee on 20th -21st January in Derry (Northern Ireland). This project is due to finish in Feb 2020 and this is the last face to face of a very large consortium of 60+ across Europe and America. This will not only bring consortium but extended health practitioners and policy leads to the event.
There will be a showcase of outputs of MIDAS, Other PM18 Project Outputs, plus lots more on Health Care Data, Big Data & Ethics.
This will be a free event of MIDAS demonstrations across all the health policy departments (BSO/HSE – Republic of Ireland/Basque Country /Finland) and some training and development workshops around the value of data, data science, GDPR & Honest Broker. The event is free to attend (but you have to register) and we are extending our invitations to a wide range of people – such as politicians, policymakers, clinical staff, charities, education providers, etc.
- Information about Hotel and Accommodation during the Symposium
If you have not booked your Hotel yet, Please, quote “MAGEE SYMPOSIUM” when contacting the respective hotels listed below to book to avail of these discounted delegate rates. We have added hotel travel distance estimates from the Symposium Venue (Ulster University – Magee Campus, MU Building, Northland Road, Derry/Londonderry, BT48 7JL).
Holiday Inn Express(< 15 min walk, 3-4 min drive)
31 Strand Road, Derry~Londonderry BT48 7BL
Hotel: 028 7116 2400
£53.00 B&B per room
Maldron Hotel (about 20 min walk, 5-7 min drive)
Butcher St, Londonderry BT48 6HL
Phone: 028 7137 1000
£60 B&B per night single occupancy
Da Vinci’s Hotel (about 30 min walk, 5-7 min drive)
15 Culmore Rd, Londonderry BT48 8JB
Phone: 028 7127 9111
£70 single BB & £80 twin / double BB
City Hotel (about 10 min walk, 3 min drive)
Queens Quay, Londonderry BT48 7AS
Phone: 028 7136 5800
£65 B&B Single and £75 B&B Twin or Double
Bishop’s Gate Boutique Hotel(about 20 min walk, 6-8 min drive)
24 Bishop St, Londonderry BT48 6PP
Phone: 028 7114 0300
£95 Single Occupancy inclusive of breakfast
2. Local and International Travel
If you are coming from within Northern Ireland or the Republic of Ireland, The Ulster University- Magee Campus is reachable by one or a combination of transport options such as Train, Bus, or Taxi.
If you travel to Derry by Train, the city offers free bus transport from the train station to the Main Bus Station (after which is 10 minutes’ walk to the Campus or you can use a Taxi).
- If you or any other delegates are travelling from Belfast City & International Airport, you can use the link with The Airporter Shuttle Bus: Delegates can enter “MIDAS” at checkout to avail of 20% off.
- For those travelling through Dublin Airport, NOT many direct options. The available options include:
- Visit https://www.translink.co.uk/ website for cheaper options
- Take the bus/train from the Dublin airport to Belfast, then bus/train to Derry -longer
- If (many) arriving at the same time (maybe car rent -not sure the costs). -shorter.
Registration for the Symposium is through the Eventbrite
Please, make sure you have registered your attendance through the link below to avoid any inconvenience.
Please, register here
The final live version of the agenda can be viewed or downloaded from HERE
Free add-on tour
There will be a free tour of the State of the Art Intelligent Systems Research Center (ISRC), ScaniHub, Robotic Centre, BCI, and MEG Lab 21st Jan (Tuesday 08.am -09.am). You can pre-register by sending us an email. Onsite registration will also be available
If you have any queries or need help with your travel preparation, please contact.
Jailos Lubinda (firstname.lastname@example.org ) or Wallace Jonathan (email@example.com)
We will respond as soon as we can.
Co-Design Workshop (16 November 2017 9am-3pm)
Wellington Park Hotel, Malone Road, Belfast
The primary goal of the MIDAS Project is to address the needs of policymakers and citizens through the delivery of a unified big data platform. In order to ensure that the information provided by the MIDAS platform is actionable, the technical implementation will adopt a user-centred design approach, thus maximising the positive impact on health policy across Europe. This means that stakeholders will be involved at an early stage in helping to co-design the MIDAS user experience.
The MIDAS consortium includes a wide range of experts from academia, business and the public, with a mixture of both technical and policy knowledge. By including as broad a range of expertise as possible in the design of the system, the project aims to effectively meet user needs and to be as usable as possible.
As part of this participatory innovation approach, the MIDAS team will be holding a Co-Design Workshop on 16 November, which will be open not only to consortium members but also to the wider public. The workshop will take participants through a staged process, which will include the development of “personas” (i.e., typical users of the system), the identification of “user stories” (simple, non-technical descriptions of user requirements), and the brainstorming of “wireframes” (interface design ideas) on paper and online. In order to make the event as engaging as possible, participants will be grouped into active teams.
This event should be of interest to anyone – policymakers, technologists and business people – who would like to get a deeper understanding of the MIDAS project and of how big data can be used to improve public policy. It will be designed to be enjoyable and useful for both technical and non-technical stakeholders, and will provide an insight into how participatory design methods can make technology more effective and meaningful for individuals and organisations.
Consent, Ethics & GDPR Workshop (17 November 2017 9am-1pm)
Loughview Suite, Jordanstown Campus, Ulster University
Health care delivery should always be underpinned by the evidence base. The evidence is created and maintained through the acquisition and interrogation of data by those with the skills and ability to understand and action this analysis at a variety of levels, to meet individual need, organisational need and population need. With increasing complexity in healthcare systems, comorbidities, genomics, aging population, financial pressures, personalised medicine, complex imaging, EHRs etc., there is an opportunity to utilise this data to drive innovation, quality and service.
Since its inception, the MIDAS project has integrated the need for ethics and good practice through its structure and outcomes. The consortium is acutely aware of the sensitivities when working with data, even in the context of anonymised or pseudo-anonymised data, as well as the organisations and parties that may potentially have access to this data. One needs only to look at recent stories in respect of the NHS and Google to understand how perception and protection are key considerations when moving in this domain, as well as implementing the requirements of the General Data Protection Regulation (GDPR) which became law in 2016, and must be in place in organisations by May 2018.
At its heart, MIDAS aims to create a viable model of consent and good practice that will ensure data is used appropriately, meaningfully and transparently to underpin the policy cycle. This will lead to the creation of a coherent and pragmatic system that recognises and protects individual participation whilst maximising the benefit for society as a whole.
To this end, the consortium have developed a half day workshop that aims to bring interested parties together from academia, business, the public and the clinical domain to discuss some of the early lessons learned and findings from the project, and to gain insight from potential end users including their needs and requirements going forward with particular emphasis on the GDPR.